Nuriel at 9 months

Medical Interventions:
Endoscopic Craniosynostosis repair at 2 months

Cranial Vault Craniosynostosis repair at 6 months

Lumbar Puncture to treat intercranial pressure at 7.5 months

Vision, -13 on the dioptic scale, wears corrective lenses since 4 months of age

Extreme Obstructive Sleep Apnea treated by Bipap since 7 months of age


Personality:
Happy

Other Features:
Pfeiffer-like broad, flat thumbs and big toes
Sclera grows over part of the iris
Strabismus
Papilodema
Hydrocephalus
Low Tone
Developmental Delays